Antiques Roadshow’s youngest fan! #wvantiques #einsteinhair

Antiques Roadshow’s youngest fan! #wvantiques #einsteinhair


We’re home (and if you follow me on Twitter you know we’ve discovered our water heater is on vacation).  Just wanted to give a little more detail about our visit for the curious Charlie friends and fans:

  • We knew we’d be back for a VEEG back in spring, so this was a planned visit.  Our regular neuro wasn’t sure we were still seeing seizures: sometimes it’s hard to tell what is a seizure and what is Charlie concentrating/thinking, or as Andy likes to say, just leaving for Toddler Planet.
  • The new doctor was very good - we are going to investigate to see if we can switch to him all the time - and confirmed that he is, in fact, still having seizures.  This EEG showed that the seizures are for certain originating in the right frontal lobe.  We suspected both of these things already based on the last EEG in the fall, so no surprises there, either.
  • We will keep going up on the Lamictal (same meds he’s been on since May 2013), but as of our discharge time, they did not have the blood level labs back.  We are guessing he’s not out of range on the meds, and will have more room to go up if needed.
  • We will be scheduling an MRI and PET scan soon.  At the EEG last fall, we discussed doing this this summer, anyway, but our regular neuro sort of poo-pooed the idea in spring.  Now it’s back on the table, and we are still on board with the idea.  This will allow the doctors to get a clear idea of what/where is causing the seizure origination.  This will also allow the doctors to consider if surgery could be an option for Charlie.  We’ll cross that bridge when we get there.

So, all in all, no big surprises, just moving forward.  We are very thankful to have captured a few episodes and gathered enough data to give the doctors a picture of what we’re seeing at home.  It’s terribly selfish, but I’m also relieved to have our suspicions confirmed that he is still having seizures - it’s so hard second-guessing what you’re seeing all the time!

Glad to be home.  :)


This is hysterical.  Charlie is “smiling” and the flash scared Walt. #brothers

This is hysterical. Charlie is “smiling” and the flash scared Walt. #brothers


Thank goodness for double nap.  This mama needed a mental break.  Now, stay away hospital staff…

Thank goodness for double nap. This mama needed a mental break. Now, stay away hospital staff…


Almost nap lap.

Almost nap lap.


Nap lap.

Nap lap.


At least Walt is having fun!  Rainbow stripes shirt, rainbow mat, and rainbow rings…put this baby in a parade!

At least Walt is having fun! Rainbow stripes shirt, rainbow mat, and rainbow rings…put this baby in a parade!


On our way to Cleveland Clinic for Charlie’s 6th ever EEG.  Wish us luck!  So far, Walt is being a champion traveler, but I expect he will wake up soon.  ;)

On our way to Cleveland Clinic for Charlie’s 6th ever EEG. Wish us luck! So far, Walt is being a champion traveler, but I expect he will wake up soon. ;)


Walt 6 month stats

Walt went in for his 6 month appointment today, and he was Very Sad about the shots.  Luckily he cheered up quickly after I picked him up, but whoa, WHOA, at the saddest face ever. 

  • Weight: 18lbs 6oz [50th percentile]
  • Length: 26” [50th percentile]
  • Head: 46cm [97th percentile, !!!]

The good news: he’s a healthy, happy baby! The less good news for mom: no dairy for another 6 months.  WAAAHHHHHHHHHH.  Walt, you better be glad I love you because ICE CREAM, CHEESE, ETC.  The doc also gave the go-ahead (and encouragement) to start a little sleep training since he’s still waking every 2 hours to eat all night.  I’m going to hold off on starting that in earnest until after our trip to Cleveland Clinic this week since any schedule we have will be off, anyway.  Here’s hoping he miraculously starts sleeping for longer stretches before I have to make him cry it out.  :(


Happy birthday to Grandpa!  Charlie took him out for a birthday dinner a day early while we got to visit.   Charlie ate more lo mein than any two year old possibly ever; note the shoving of food in his face to chipmunk cheeks proportions.  Walter helped me take the picture, so let’s just call it artsy instead of blurry. ;)  He also tried to help himself to a fist full of rice snatched from my plate, lol.

Happy birthday to Grandpa! Charlie took him out for a birthday dinner a day early while we got to visit. Charlie ate more lo mein than any two year old possibly ever; note the shoving of food in his face to chipmunk cheeks proportions. Walter helped me take the picture, so let’s just call it artsy instead of blurry. ;) He also tried to help himself to a fist full of rice snatched from my plate, lol.


Mischief maker.

Mischief maker.


No Cleveland Clinic tomorrow

Quick update: I don’t think I had posted about it, but some folks knew we were scheduled for another 48 hour VEEG tomorrow. Unfortunately the Pediatric Epilepsy Monitoring Unit is full and they have no bed for Mr. C. We are rescheduled for August 7-8. (And this is why we wait until the last minute to book hotel rooms any more, because we’ve been burned at least 3 times now.) Was hoping to get this over with, but at least now we’ll get to visit with the Grandparents W, who were coming to town to move Uncle Mike. Please think happy thoughts for those families in the unit who are there instead of us; I always try to.


These just made me chuckle.  Enjoy some outtakes of Walt’s 6 month photo shoot with “helper” Charlie (and Andy’s arm, ha!).  No Walter was harmed in the taking of these photos, for the record.  ;)


Happy 1/2 birthday, Walt!

Things you like:

  1. Mom’s funny faces/sounds
  2. Getting stuff: reaching for crinkly things (wipes container, especially); Charlie/Charlie’s hair; toys in general
  3. Exersaucer
  4. Charlie
  5. Baby Mum-Mums, and generally trying to eat
  6. Peek-A-Who? book

Things you do not like:

  1. Having your toys get out of reach
  2. Sleeping through the night, or really, for longer than about 90 minutes (*yawn)
  3. Being too far from Mom
  4. Long rides in the car (short trips are MUCH improved)
  5. Sweet potatoes: worst. food. ever.

Walt is starting to sit up more and more - with some assistance, he can sit up for quite some time!  He is lunging after toys on the floor big time, although he generally ends up spinning 360 degrees.  :)  Walt loves Charlie so, so much.  It is so cute.

No teeth yet (Charlie had 2 bottom teeth by now), but lots of chewing and drooling going on.  We go in for his 6 month appointment a little late, so no current weight/length to report, but he’s solidly in 6-9/9 month clothes and growing fast. 

Walt certainly makes his wants known in a way Charlie never did - I’ve taken to calling him Walt Determinator Wehrman because he is the most DETERMINED baby I’ve ever met! 

We’re so excited for your next six months, buddy!  You are such a hoot.


Charlie “helped” me take Walt’s 6 month pictures today.  (I will post those later tonight, but couldn’t help but post this cute guy now!)

Charlie “helped” me take Walt’s 6 month pictures today.  (I will post those later tonight, but couldn’t help but post this cute guy now!)