Exciting things happening in sqwehrman land:

  1. Charlie started sweating this week!  I know that seems weird to be excited about, but we’ve been waiting for over a year for an old medication’s effects to finally wear off.  He still takes a while to truly cool off, but it’s major progress!  
  2. Walt is totally crawling.  Army crawling, but truly getting where he wants to go!  He’s even [very slowly] crawling after mama, which is so cute.  His separation anxiety has kicked into gear, too, which is less cute, but also a milestone.  I’m sure my wee shadow will be moving faster soon.  :)
  3. Charlie starts preschool next week.  We went in for Orientation and Open House at the end of this week, and he LOVED the classroom.  I couldn’t even get him to look at the camera - he just wanted to run around and check out all the things.  :)  Of course he found a book with numbers…  ha.
  4. Walt got his first tooth!  Seems like it took a gazillion years, but Tooth #1 has finally broken through.  He’s been a little grumpy, but that’s understandable. (So far, his teething has been less traumatic than Charlie’s.  Phew.)
  5. Last but not least, Walt has been babbling up a storm.  Da da da BA DA buh duh.  You guys, he even really and truly said “Goo goo ga”.  That is only one “ga” short of being a cartoon baby.  I didn’t realize babies actually said that!  

Hoping blogging will start to be a little easier to do next week once I go down to part-time at work.  Cross your fingers for us as we make a lot of transitions next week!  :)


I cannot get enough of this kid. 
(Or his brother, but he was not in a photo mood.) 
#babiesinglasses

I cannot get enough of this kid.
(Or his brother, but he was not in a photo mood.)
#babiesinglasses


7 months old! (+ a few days; sorry, pal)

It’s been a very busy start of the academic year, so we are way behind on posting!  In the meantime, Walt has turned into a sitting up champ (not 100% yet, but longer and longer stretches every day!).  And as of this weekend, we have a forward-motion crawler!  He can get up on all fours and rock back and forth, but his forward crawling is sort of a diagonal army crawl.  It won’t be long before he puts the two together, but he can get where he wants to get to (slowly) now.  

Walt is still not a big fan of solids, so we are going to be more consistent in offering a meal or two daily this month to try and ease the MILK ALL THE TIME urge he still has.  This month will also bring a real attempt at some cry-it-out, since he’s only had one 4-hour stretch of sleep in the last 3 months.  Last night, for instance, I still saw every hour on the clock.  This may have been some developmental leap disturbance, but we both need some longer swaths of sleep.  *yawn.

Mr. Walter is the sweetest baby ever, though.  He hardly ever pitches a fit, unless you’re taking the toy/whatever he’s interested away. ;)  He loves Charlie and thinks he is hilarious.  Everyone at daycare loves him, and all the little girls (~1 year old) in his room just dote on him all the time.  They all say “HI WALL” when he comes in.  :)  He’s quite the flirt.


Antiques Roadshow’s youngest fan! #wvantiques #einsteinhair

Antiques Roadshow’s youngest fan! #wvantiques #einsteinhair


We’re home (and if you follow me on Twitter you know we’ve discovered our water heater is on vacation).  Just wanted to give a little more detail about our visit for the curious Charlie friends and fans:

  • We knew we’d be back for a VEEG back in spring, so this was a planned visit.  Our regular neuro wasn’t sure we were still seeing seizures: sometimes it’s hard to tell what is a seizure and what is Charlie concentrating/thinking, or as Andy likes to say, just leaving for Toddler Planet.
  • The new doctor was very good - we are going to investigate to see if we can switch to him all the time - and confirmed that he is, in fact, still having seizures.  This EEG showed that the seizures are for certain originating in the right frontal lobe.  We suspected both of these things already based on the last EEG in the fall, so no surprises there, either.
  • We will keep going up on the Lamictal (same meds he’s been on since May 2013), but as of our discharge time, they did not have the blood level labs back.  We are guessing he’s not out of range on the meds, and will have more room to go up if needed.
  • We will be scheduling an MRI and PET scan soon.  At the EEG last fall, we discussed doing this this summer, anyway, but our regular neuro sort of poo-pooed the idea in spring.  Now it’s back on the table, and we are still on board with the idea.  This will allow the doctors to get a clear idea of what/where is causing the seizure origination.  This will also allow the doctors to consider if surgery could be an option for Charlie.  We’ll cross that bridge when we get there.

So, all in all, no big surprises, just moving forward.  We are very thankful to have captured a few episodes and gathered enough data to give the doctors a picture of what we’re seeing at home.  It’s terribly selfish, but I’m also relieved to have our suspicions confirmed that he is still having seizures - it’s so hard second-guessing what you’re seeing all the time!

Glad to be home.  :)


This is hysterical.  Charlie is “smiling” and the flash scared Walt. #brothers

This is hysterical. Charlie is “smiling” and the flash scared Walt. #brothers


Thank goodness for double nap.  This mama needed a mental break.  Now, stay away hospital staff…

Thank goodness for double nap. This mama needed a mental break. Now, stay away hospital staff…


Almost nap lap.

Almost nap lap.


Nap lap.

Nap lap.


At least Walt is having fun!  Rainbow stripes shirt, rainbow mat, and rainbow rings…put this baby in a parade!

At least Walt is having fun! Rainbow stripes shirt, rainbow mat, and rainbow rings…put this baby in a parade!


On our way to Cleveland Clinic for Charlie’s 6th ever EEG.  Wish us luck!  So far, Walt is being a champion traveler, but I expect he will wake up soon.  ;)

On our way to Cleveland Clinic for Charlie’s 6th ever EEG. Wish us luck! So far, Walt is being a champion traveler, but I expect he will wake up soon. ;)


Walt 6 month stats

Walt went in for his 6 month appointment today, and he was Very Sad about the shots.  Luckily he cheered up quickly after I picked him up, but whoa, WHOA, at the saddest face ever. 

  • Weight: 18lbs 6oz [50th percentile]
  • Length: 26” [50th percentile]
  • Head: 46cm [97th percentile, !!!]

The good news: he’s a healthy, happy baby! The less good news for mom: no dairy for another 6 months.  WAAAHHHHHHHHHH.  Walt, you better be glad I love you because ICE CREAM, CHEESE, ETC.  The doc also gave the go-ahead (and encouragement) to start a little sleep training since he’s still waking every 2 hours to eat all night.  I’m going to hold off on starting that in earnest until after our trip to Cleveland Clinic this week since any schedule we have will be off, anyway.  Here’s hoping he miraculously starts sleeping for longer stretches before I have to make him cry it out.  :(


Happy birthday to Grandpa!  Charlie took him out for a birthday dinner a day early while we got to visit.   Charlie ate more lo mein than any two year old possibly ever; note the shoving of food in his face to chipmunk cheeks proportions.  Walter helped me take the picture, so let’s just call it artsy instead of blurry. ;)  He also tried to help himself to a fist full of rice snatched from my plate, lol.

Happy birthday to Grandpa! Charlie took him out for a birthday dinner a day early while we got to visit. Charlie ate more lo mein than any two year old possibly ever; note the shoving of food in his face to chipmunk cheeks proportions. Walter helped me take the picture, so let’s just call it artsy instead of blurry. ;) He also tried to help himself to a fist full of rice snatched from my plate, lol.


Mischief maker.

Mischief maker.


No Cleveland Clinic tomorrow

Quick update: I don’t think I had posted about it, but some folks knew we were scheduled for another 48 hour VEEG tomorrow. Unfortunately the Pediatric Epilepsy Monitoring Unit is full and they have no bed for Mr. C. We are rescheduled for August 7-8. (And this is why we wait until the last minute to book hotel rooms any more, because we’ve been burned at least 3 times now.) Was hoping to get this over with, but at least now we’ll get to visit with the Grandparents W, who were coming to town to move Uncle Mike. Please think happy thoughts for those families in the unit who are there instead of us; I always try to.